Kathula · HackerTrans

letztes Jahrdiscuss

There's a Terminator tv-show from 2008 that was pretty good. It's about John as teenager, going to high school and dealing with that while fleeing a Terminator that's been sent back. But I agree with your overall premise, if it isnt about John or Sarah in "the present", then it's pretty boring.

Kathula

letztes Jahrdiscuss

Yeah on the opposite I'd say it's pretty clear that the insomnia and poor sleep during night contributes heavily to why we are so spent and sleepy during the day. Aside from general insomnia I also had so much night terrors. Terrible nightmare, then waking up, then resuming the terrible nightmare again. Sometimes I'd try to stay awake just not to experience the night terrors. I inadvertently learned lucid dreaming to handle them.

Kathula

vor 2 Jahrendiscuss

I got it after pandemrix vaccine as well. Sodium oxybate absolutely helps with wakefulness, turns out you feel more awake and are less prone to fall asleep if you get good sleep at night (although induced by medicine).

Kathula

vor 2 Jahrendiscuss

I'm not a regular poster here, so sorry if I don't follow the rules or etiquette correctly, but I gotta go to bat for Xyrem. I have Narcolepsy, so our situations aren't exactly identical, but it seems to me IH and Narcolepsy have a big overlap.

First of all, the benefit of taking Xyrem is so, so big. It doesn't compare to any other medication or stimulant. You can get quality sleep at night. No more insomnia, lying awake, or constant night terrors and waking up 30 times a night. You feel refreshed when you wake up, like a weight has been lifted from your shoulders. Like a veil has been revealed.

The risks aren't that great, if you take it as prescribed it shouldn't cause you any trouble, at least not anything major. Nausea usually only happens when you titrate up the doses too quickly. It happened to me, maybe 5 nights, or 10 at the most. Hasnt happened now in 10 years I've been on it.

You should look it up more. You can check in the narcolepsy reddit, there's always questions and discussions around Xyrem/sodium oxybate every day.

I do sympathize with the high cost and insurance problem. It certainly isn't a medication most people can afford on their own.

Kathula

vor 2 Jahrendiscuss

I have narcolepsy as well. What really helps a lot is a type of medication called sodium oxybate. Different kinds of stimulants never did anything to me, they might (might) keep me awake more, but I never felt rested, and always had constant brain fog. Xyrem changed that for me. Now I get many hours of good sleep at night, making me feel rested waking up. I'm still more prone to fall asleep during the day than the average person, but it's mostly after I've eaten a big meal. Do yourself a service and look it up.

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