My original specialist wasn't very engaged with my condition. I was getting the same speech every six month visit. On my last meeting she incorrectly stated a condition I wasn't having with bleeding.
My wife had a thyroid issue a number of years ago including cancer growth on it. Her first specialist was using older techniques for her treatment. We ended up going to another specialist who's focus of research was her condition. It was worlds better. Given that experience I decided to find another specialist who focused on my condition.
The first specialist ( hematologist) was referred from local GP. She is a a hematologist, but she wasn't focused on MPNs.
I recommend joining your local MPN alliance to keep up with what's going on in this field. I also recommend finding a specialist with a focus on MPNs. Looks at their papers or listed focus.
I was diagnosed with a rare blood disease called Essential Thrombocythemia (ET) which is part of a group of diseases called myeloproliferative neoplasms. This happened about three years ago. Recently, I decided to get a second opinion and my new specialist changed my diagnosis from ET to Polycythemia Vera (PV). She also highly recommended I quickly go and give blood to lower my haematocrit levels as it put me at a much higher risk of a blood clot. This is standard practice for people with PV but not people with ET. I decided to put the details into google AI in the same way that the original specialist used to diagnose me. Google AI predicted I very likely had PV instead of ET. I also asked Google AI how one could misdiagnose my condition with ET instead of PV and google correctly explained how. My specialist had used my high platelet count and blood test that came back with a JAK2 mutation then after a bone marrow biopsy to incorrectly diagnose me with ET. My high hemoglobin levels should of been checked by my first specialist as an indication of PV not ET. Only the second specialist picked up on this. Google AI took five seconds, and is free. The specialists costs $$$ and took weeks.
Here is the translation from the article. Which is slightly different from what is listed below in the comments.
Now let us praise Heaven-Kingdom's guardian,
the Maker's might and his mind's thoughts,
the work of the glory-father—of every wonder,
eternal Lord. He established a beginning.
He first shaped for men's sons
Heaven as a roof, the holy Creator;
then middle-earth mankind's guardian,
eternal Lord, afterwards prepared
the earth for men, the Lord almighty.
Thanks for the response. Sorry I should of been less vague. Paqet works on raw sockets with KCP. Though it's intended for good. What's to assume bad actors aren't also using this method to get around solutions like littlesnitch?
A recent example, but not the only is a Iran a botnet, using this to get around detection.
I was diagnosed with a rare blood disease called Essential Thrombocythemia (ET) which is part of a group of diseases called myeloproliferative neoplasms. This happened about three years ago. Recently, I decided to get a second opinion and my new specialist changed my diagnosis from ET to Polycythemia Vera (PV). She also highly recommended I quickly go and give blood to lower my haematocrit levels as it put me at a much higher risk of a blood clot. This is standard practice for people with PV but not people with ET. I decided to put the details into google AI in the same way that the original specialist used to diagnose me. Google AI predicted I very likely had PV instead of ET.
I also asked Google AI how one could misdiagnose my condition with ET instead of PV and google correctly explained how. My specialist had used my high platelet count and blood test that came back with a JAK2 mutation then after a bone marrow biopsy to incorrectly diagnose me with ET. My high hemoglobin levels should of been checked by my first specialist as an indication of PV not ET. Only the second specialist picked up on this. Google AI took five seconds, and is free. The specialists costs $$$ and took weeks.
Stoicism explores these ideas. One of the basic premises is that all external events are out of our control and to focus on what is, basically what is in our mind and our actions. Then we should try to discipline our ideas around virtues which are always good instead of outcomes and externals. That summary doesn't do it justice, if interested in exploring further. There are some good books on amazon or check out dailstoic for a quick overview.
https://dailystoic.com/what-is-stoicism-a-definition-3-stoic...