I have been sleeping in a tent for over three years. I go to a library to plug in. I don't have cooking capacity and I get hot meals from eateries. I self identify as homeless and I am fairly poor, but it was a choice. I walked away from a corporate job that was helping to keep me sick. This lifestyle is helping me get well.
There is no heat or electricity in my humble abode. We adjust amount of bedding and other details, depending on weather.
It has been an interesting experience. I want a house again, but I can imagine it being something small and simple with few amenities compared to most conventional housing.
I am still trying to work out those details. But very much enjoyed this article and posted a link to it on my homeless blog.
I started to reply last night when there were only two comments, but then decided to stfu and leave the discussion to real hackers. After skimming what real hackers have said, I think my observation is still relevant:
A) There are plenty of people already tweaking hn in the form of "add ons" like hnnotify.com. That piece already exists and without being the kind of problem that this approach would become.
B) People seem to routinely miss that hn is part of the yc business process. (I honestly don't get how anyone can miss that but posts like this one clearly do. I was a homemaker for eons and I get it.) You know, that is just slightly relevant to how and why things get done the way they are (aka central to the decision making process). This doesn't make good business sense, for reasons other more informed members have already covered.
Thanks. Someone has generously written me privately to give me a clue or three. This article, the blog, additional research...etc ...ate my day yesterday. As someone said to me recently: It made me think and that's always a good thing. I am off to examine my belly button and record my thoughts on the matter for my own edification.
My specialist praised me for getting better, scheduled me fewer appointments, commented his time would be best spent on people who needed his services, and expressed zero interest in how I was getting well when that was supposed to be impossible. I did not bother to get a new doctor when I moved elsewhere.
Thanks for answering. Is that absolutely the only thing it does? Because I am getting the vague impression the miscoded protein has some other functions as well.
Sorry I wasn't clear. I am currently looking at info on NGLY1 and trying to parse out its exact function in order to try to understand the commonalities this seems to have with my condition. "Lacks x enzyme" doesn't give me a picture of what functions are missing. I am not a medical professional. I need laymen's explanations of specific functionality, which are quite hard to come by.
Um, it's possible I am just stupid and I am still trying to look up info on this. But that doesn't help me adequately understand it.
This piece is interesting to me because I have a form of cystic fibrosis, which is a genetic disorder. Long QT waves -- the heart problem the child had from an antibiotic -- can be caused by a magnesium deficiency. Magnesium supplementation helps a lot of people with CF. Also, they mention a possible treatment for this condition that is currently used for some people with CF. So I am wondering how it relates to my condition, basically. But I have gotten well by framing the question different from the medical community and others with my condition.
In cystic fibrosis, the miscoded protein is the CFTR, which handles traffic into and out of the cell for certain specific molecules. Understanding which molecules are impacted was enormously useful info. People with CF are routinely put on digestive enzymes, which I no longer require. So I am trying to understand what is going on with this child in terms which make sense from my mental framework regarding my genetic disorder and "enzyme deficiency" doesn't sound to me like it is really the root problem (but maybe I am an idiot -- it would hardly be a first). That may not be possible to achieve but I will work on it anyway.
I am not part of the medical industry. I run an alternative health site where I talk about my non drug approach to health issues. Doctors generally want nothing to do with me and I have gotten far harsher criticism than what has been doled out here to you. I just happen to believe colloidal silver is bad advice.
People also got "spectacular" results from antibiotics. Initially, optimists announced that we were ushering in an age free from disease. Fast forward a few decades and we now have frightening antibiotic resistant infections to contend with.
I am not claiming there are zero short term benefits to be had. I am only claiming there is a long term cost and I deem it to be too high since there is no known means to reverse silver poisoning. My genetic disorder is deemed to be degenerative and fatal. I have reversed a lot of the symptoms, gotten off eight prescription drugs and gotten my life back. I recommend against colloidal silver any time anyone asks me. I am clear the build up of poisons in the body is why my condition is degenerative.
This is incredibly long and seems like it will probably never tell me the info that interests me. As I understand it, in most genetic disorders, all of the problems are rooted in a miscoded protein. I am wondering if it has been determined which protein is miscoded and what it does?
Edit: I have managed to read the whole thing and, no, it doesn't answer my question. The closest I get is that some enzyme is not being produced. For me, that is insufficient info. Moving on to the blog but would still be happy to get an answer here. Thanks!
Yes, if you want irreversible metal poisoning. If you want to try poisoning yourself with an old fashioned treatment, then mercury -- at one time a treatment for syphillis -- is probably a better bet if only because there are well established chelation protocols for getting it out of your system. In contrast, I can find no well established, proven means to remove silver. And I have tried, repeatedly, since colloidal silver is a popular alternative treatment in the CF community and I wish I had something better to offer them than the bad news they are likely making their situation worse in the long run.
There is no heat or electricity in my humble abode. We adjust amount of bedding and other details, depending on weather.
It has been an interesting experience. I want a house again, but I can imagine it being something small and simple with few amenities compared to most conventional housing.
I am still trying to work out those details. But very much enjoyed this article and posted a link to it on my homeless blog.