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mareth2

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mareth2
·il y a 2 ans·discuss
ECMO saved my granddaughter’s life 12 years ago at John Hopkins. She was born on Christmas Eve and weighed over 8lbs but turned “blue” within 30 mins of birth. She was immediately put on ventilator- dx with pediatric pulmonary hypertension. Later placed on ECMO when condition deteriorated and it saved her life. She spent months in hospital but is now a very active 12 y/o with no cognitive deficits. She is now on only one heart medication and recent heart catheter showed slight improvements. It’s my understanding she will always be on a heart medication. She came home from the hospital with a j-tube and was quite a struggle to get her to eat food or take a bottle as she never had a bottle or breast for months. It was amazing how articulate she was at a young age and how active as she had been in a induced comma for a long time.She will not be able to participate in competitive sports but can enjoy some sports for fun. She is on level at school. ECMO and the team including the surgeon who came in during the night to make the incision will never be forgotten. I still remember the team pushing the machine down the hall towards her room as a doctor carefully explained the ECMO. Not everyone is as fortunate as our “Warrior Princess” as she was in the right place at right time where the ECMO was readily available in Baltimore's John Hopkins.Margaret Evans