From 1995 though 1998 I had full blown AIDS. I knew more about care, medication and treatments for AIDS then (almost) any doctor I met.
It was one of the reason so many AIDS patient groups formed (I sat on the board of PWAC and was a member of ACTUP). Because at that time, either doctors did not or could not educate themselves on the subject.
Now, of course, it's a different matter. With HIV being a "manageable" condition (in the West anyway)every ID doctor worth his weight can talk on the subject.
From experience I can tell you, you have to manage your care. You can not expect (nor should you either) a doctor to do it for you.
Which took a million years. But now watch out - we can do it in 4 hours. That's the difference.