I too have a child with Ushers (1F). We told him at age 10, though obviously it didn't really register until some years later. Please feel free to reach out to me.
I have an (adult) child with Usher Syndrome, and have lots of connections and resources that I'd be happy to share. There is a a decent amount of research going on right now. If you like, feel free to reach me at my username at gmail.
I worked there until very close to the end, and the collapse of GO/Eo provided me with a priceless instant network of friends at dozens of companies around the SF Bay Area.
I met my spouse and some of my best friends through GO/Eo, and to this day still greatly value the connections made there for my personal and professional networks. Silver linings.
I'm also an MCC alum - I worked in the Software Technology Program. My code there had a surprisingly long life - transitioning to a spin out startup and then other companies. (See gIBIS https://en.m.wikipedia.org/wiki/Compendium_(software)#Histor... ). I too learned Lisp (and Emacs!) there - two tools that have stuck with me ever since. Many of us also started to learn Japanese there.
I used to use "pass" like others here, but did not like the Android experience.
*edited to add: and we use the 1Password team account at my day job -- and are satisfied customers. I'm sure other products work well too -- just my one data point.
true -- it's more complicated. However I wanted encrypted at rest documents (and that's hard with Dropbox), and I need backup - not just sync, so Dropbox can only provide half the solution.
This isn’t high art, but perhaps it will be useful to others. Getting my family data reasonably well backed up and synchronized between our many devices was a harder problem that I expected it to be.