Portugal also has a bit of the culture of working long hours. People joke when you leave at 6pm/7pm and ask “are you taking the afternoon off?”. We also have the “manager + 5 minutes” rule to leave work. Most of the time, when I worked in these types of companies, I was killing time and feeling depressed. After moving to the UK the culture changed. Less working ours so I started attending meetups and doing Udemy courses (most are all 60/70% finished but still!). I’m much more productive here.
My son was born with TEF/EA (TOF/OA in the UK) and needed a 4 hour surgery when he was 2 days old. The days before the surgery and the following month while he was incubated were agonising in ways I can’t even describe.
Even though my story isn’t nowhere near your situation, I can vaguely relate. To the pain you feel, but also to the strength you seem to have found, to look for the positives because, deep down, you know that being positive and embracing the situation is the best you can do for your son.
I’m sending all my love to you, your son and your family.