Hannah Gadsby on her autism diagnosis(theguardian.com)
theguardian.com
Hannah Gadsby on her autism diagnosis
https://www.theguardian.com/stage/2022/mar/19/hannah-gadsby-autism-diagnosis-little-out-of-whack
100 comments
Really interesting to hear about the link between the things you were spending time on and thr person you were. We forgot how much the things we do affect who we are.
It makes me think of the idea in that book the shallows: Where every tech advancement also removes a skill or connection.
Writing meant we lost our oral tradition and the social bonds that came with it; Maps made us better at navigating but we lost touch with the spaces we were in; The clock gave our days structure but we stop depending on our bodies to tell us when we were hungry or tired.
I do wonder how many subtle things we are giving up for the privilege of using computers and participating in a global digital culture.
Thanks so much for sharing it was insightful.
It makes me think of the idea in that book the shallows: Where every tech advancement also removes a skill or connection.
Writing meant we lost our oral tradition and the social bonds that came with it; Maps made us better at navigating but we lost touch with the spaces we were in; The clock gave our days structure but we stop depending on our bodies to tell us when we were hungry or tired.
I do wonder how many subtle things we are giving up for the privilege of using computers and participating in a global digital culture.
Thanks so much for sharing it was insightful.
I played a lot of sports and I'm very much on the spectrum. I didn't have any coordination issues though. I do find physical activity makes me feel better in general but it certainly doesn't "reduce" my autism. I have gotten a lot better at dealing with it as I've gotten older though (I guess many would call this masking).
I agree that everyone has their own journey, I don’t agree that life is equally difficult. But I do think we should think very carefully before making any attempt to try to equalize life to avoid making it worse. For example, I think grievance culture is counter productive.
Personally, I have ADHD by way of a genetic mutation. As I get older (30s) I’m getting more and more chronically fatigued. Something I presume is plaguing Hannah as well - it tends to kick in ~20s. I also think my crazy math ability is liked to it as well. While I would swap CFS for a lot of other disabilities I’m not so sure about giving up my math ability.
Personally, I have ADHD by way of a genetic mutation. As I get older (30s) I’m getting more and more chronically fatigued. Something I presume is plaguing Hannah as well - it tends to kick in ~20s. I also think my crazy math ability is liked to it as well. While I would swap CFS for a lot of other disabilities I’m not so sure about giving up my math ability.
Have you ever had a methylation profile done? Would highly recommend it. https://www.doctorsdata.com/methylation-profile-plasma/
FYI: Most "methylation" tests, books, and treatments are very firmly in the alternative medicine category. Much of it is pseudoscience.
It is true that a small subset of people can have a certain set of mutations that has clinical significance, but the alternative medicine community has been hard at work trying to expand this condition to cover far more people than it actually does.
One common trick is to perform as many tests as possible, along with as many permutations of those tests (e.g. the various ratios between values). The more tests you conduct, the easier it is to find one that might be out of a specific range and therefore convince the purchaser that the test was worthwhile. If you really wanted to test something, you'd skip this test and get a cheap genetic test to see your MTHFR variant (note: heterozygous is fine, no matter what the naturopaths try to tell you).
It's also common to claim a test has significance in every medical condition that people might be Googling. The test you linked is guilty of this, claiming to be "Useful for" everything from autism to birth defects to cancer, down syndrome, immune dysfunction, nutritional deficiencies, psychiatric disorders and more.
Any test that claims to be relevant to so many different medical conditions is a huge red flag.
Save your money. If you're curious, you can read more about how the whole "methylation" and MTHFR alternative medicine got so out of control because one naturopathic author pushed it so hard as an explanation for everything: https://www.mcgill.ca/oss/article/pseudoscience-reviews/gene...
There's another good article here about why this test isn't really warranted for most people: https://health.clevelandclinic.org/a-genetic-test-you-dont-n...
It is true that a small subset of people can have a certain set of mutations that has clinical significance, but the alternative medicine community has been hard at work trying to expand this condition to cover far more people than it actually does.
One common trick is to perform as many tests as possible, along with as many permutations of those tests (e.g. the various ratios between values). The more tests you conduct, the easier it is to find one that might be out of a specific range and therefore convince the purchaser that the test was worthwhile. If you really wanted to test something, you'd skip this test and get a cheap genetic test to see your MTHFR variant (note: heterozygous is fine, no matter what the naturopaths try to tell you).
It's also common to claim a test has significance in every medical condition that people might be Googling. The test you linked is guilty of this, claiming to be "Useful for" everything from autism to birth defects to cancer, down syndrome, immune dysfunction, nutritional deficiencies, psychiatric disorders and more.
Any test that claims to be relevant to so many different medical conditions is a huge red flag.
Save your money. If you're curious, you can read more about how the whole "methylation" and MTHFR alternative medicine got so out of control because one naturopathic author pushed it so hard as an explanation for everything: https://www.mcgill.ca/oss/article/pseudoscience-reviews/gene...
There's another good article here about why this test isn't really warranted for most people: https://health.clevelandclinic.org/a-genetic-test-you-dont-n...
As someone who personally experienced a rapid and significant resolution of ADHD, fatigue, and other symptoms as a result of a methylation test + methionine supplementation (supervised and recommended by a mainstream medical doctor at my primary care clinic), this is amusing to read.
Cue the "but anecdotal experiences aren't valid" hyperbole.
> Any test that claims to be relevant to so many different medical conditions is a huge red flag.
How much do you understand about DNA methylation?
> If you really wanted to test something, you'd skip this test and get a cheap genetic test to see your MTHFR variant (note: heterozygous is fine, no matter what the naturopaths try to tell you).
Homozygous C677T still affects ~10% of caucasians but isn't sufficient in and of itself to show poor methylation. C677T only shows a predisposition to the problem. So you have it backwards on recommended tests.
Since not everyone knows where to find cheap genetic tests, I'll be a good neighbor and recommend Nebula Genomics + Promethease (with the exported raw data). Stay away from 23andme.
Cue the "but anecdotal experiences aren't valid" hyperbole.
> Any test that claims to be relevant to so many different medical conditions is a huge red flag.
How much do you understand about DNA methylation?
> If you really wanted to test something, you'd skip this test and get a cheap genetic test to see your MTHFR variant (note: heterozygous is fine, no matter what the naturopaths try to tell you).
Homozygous C677T still affects ~10% of caucasians but isn't sufficient in and of itself to show poor methylation. C677T only shows a predisposition to the problem. So you have it backwards on recommended tests.
Since not everyone knows where to find cheap genetic tests, I'll be a good neighbor and recommend Nebula Genomics + Promethease (with the exported raw data). Stay away from 23andme.
I’m glad you found resolution for your personal symptoms with the help of a doctor.
The mistake is promoting methylation quackery as the underlying cause of everything, as your link above did. It’s obvious quackery and the medical community unanimously agrees (see my references above).
I’m glad you found a specific help for your specific situation. Extending that to be a wide-scale affliction of the population is the mistake.
I hope everyone reading this thread takes time to review mainstream medical sources (not naturopathic authors, test peddling websites, or anecdotes)
The mistake is promoting methylation quackery as the underlying cause of everything, as your link above did. It’s obvious quackery and the medical community unanimously agrees (see my references above).
I’m glad you found a specific help for your specific situation. Extending that to be a wide-scale affliction of the population is the mistake.
I hope everyone reading this thread takes time to review mainstream medical sources (not naturopathic authors, test peddling websites, or anecdotes)
My guy, the parent commenter has been suffering for decades. It’s not unreasonable to try new ideas at this point, nor is it unreasonable to assume that mainstream medicine has done what it can. The cost of the test is relatively low, and the risks of taking SAMe or L-methionine are low as well. The only risk here is that to the bottom line of the AMA cartel.
The test I linked is the same one that I had taken, don’t judge a book by its cover.
It’s not a catch all for everything, that’s why I suggested a $200 test, not a $20 supplement.
> Extending that to be a wide-scale affliction of the population is the mistake.
The very real pandemic of not-my-problem-itis is what led to this, with Obamacare making it into a gasoline fire. Good for profits, bad for life expectancy.
> the medical community unanimously agrees (see my references above).
The whole premise of that Cleveland Clinic article is based on the idea that genetic testing costs thousands of dollars as it does under the AMA cartel prices. Mayo Clinic for example charges $7000 for a few dozen generic markers. The genetic test I suggested is $99, and you get the entire part of the genome that has variations among humans. I would agree with the article that you shouldn’t pay an arm and a leg for a single genetic marker, but that’s not what we are talking about here.
The test I linked is the same one that I had taken, don’t judge a book by its cover.
It’s not a catch all for everything, that’s why I suggested a $200 test, not a $20 supplement.
> Extending that to be a wide-scale affliction of the population is the mistake.
The very real pandemic of not-my-problem-itis is what led to this, with Obamacare making it into a gasoline fire. Good for profits, bad for life expectancy.
> the medical community unanimously agrees (see my references above).
The whole premise of that Cleveland Clinic article is based on the idea that genetic testing costs thousands of dollars as it does under the AMA cartel prices. Mayo Clinic for example charges $7000 for a few dozen generic markers. The genetic test I suggested is $99, and you get the entire part of the genome that has variations among humans. I would agree with the article that you shouldn’t pay an arm and a leg for a single genetic marker, but that’s not what we are talking about here.
What's a methylation profile? I tried reading the link but it seemed quite technical.
Methylation is a metabolic chemical reaction your body does, facilitated by enzymes, that sticks a methyl group onto stuff. There’s different genetic mutations for more or less copies or less efficient copies of the relevant enzymes.
The idea is some people are genetically very low/poor methylaters so they’re methylation impaired. Generally the solution if found to be a poor methylater is to take forms of vitamins that are already methylated, like methylfolate
The idea is some people are genetically very low/poor methylaters so they’re methylation impaired. Generally the solution if found to be a poor methylater is to take forms of vitamins that are already methylated, like methylfolate
> Generally the solution if found to be a poor methylater is to take forms of vitamins that are already methylated, like methylfolate
Other possible treatments are L-Methionine or S-Adenosyl-Methionine (SAMe), as was recommended in my personal case of a deficiency in "methionine adenosyltransferase" (https://en.wikipedia.org/wiki/S-Adenosylmethionine_synthetas...). If you are on a concurrent SSRI (as many with this problem tend to need), the L-Methionine is temporarily used in lieu of the SAMe in order to help wean off the SSRI without the risk of Serotonin Syndrome that comes with SAMe + SSRI combination.
I'm not a doctor, just someone who has this as a patient.
Other possible treatments are L-Methionine or S-Adenosyl-Methionine (SAMe), as was recommended in my personal case of a deficiency in "methionine adenosyltransferase" (https://en.wikipedia.org/wiki/S-Adenosylmethionine_synthetas...). If you are on a concurrent SSRI (as many with this problem tend to need), the L-Methionine is temporarily used in lieu of the SAMe in order to help wean off the SSRI without the risk of Serotonin Syndrome that comes with SAMe + SSRI combination.
I'm not a doctor, just someone who has this as a patient.
Not yet, I’ve been going down other paths. I’ll look into it, thx
I was always "geeky" and a little behind in terms of socio-emotional development. In recent years I started wondering if I was on the spectrum.
But the more I've delved into it, I've come to the conclusion that no, it's just that I was geeky + raised in a home with abuse, and that when you don't get your emotional needs met in childhood, you skip a lot of developmental milestones and have to make up for them later.
There's more than one reason to feel like you don't "get" certain things about social interaction.
But the more I've delved into it, I've come to the conclusion that no, it's just that I was geeky + raised in a home with abuse, and that when you don't get your emotional needs met in childhood, you skip a lot of developmental milestones and have to make up for them later.
There's more than one reason to feel like you don't "get" certain things about social interaction.
38 here, and really started to make headway with my spectrum issues in my early 30s.
And I think you are absolutely onto something about having “analog” activities. I started playing sports in my 30s (oh god my joints), and learning to move through real 3D space and real the subtleties of other people’s body language and movement was a real breakthrough for me.
Now…that does present a bit of a chicken/egg problem. Because I had just terrible proprioception growing up. Awful. Clumsy as all get-out. Which tends to go along with spectrum disorders.
And I think you are absolutely onto something about having “analog” activities. I started playing sports in my 30s (oh god my joints), and learning to move through real 3D space and real the subtleties of other people’s body language and movement was a real breakthrough for me.
Now…that does present a bit of a chicken/egg problem. Because I had just terrible proprioception growing up. Awful. Clumsy as all get-out. Which tends to go along with spectrum disorders.
> Now…that does present a bit of a chicken/egg problem. Because I had just terrible proprioception growing up. Awful. Clumsy as all get-out. Which tends to go along with spectrum disorders.
I was much the same way--absolutely abysmal at any sort of sport requiring the barest ounce of physical coordination. I semi-randomly ended up in ballet class in my early teens though, and started social dance in college because my friends did. I can't say I was amazing at those either, but not so awful as I was at youth sports, and it's developed into a great way to de-stress.
My proprioception for dance is quite good now (even if I'm still shit at remembering specific steps), and while I can't compare it to others', I'd guess that sticking with it forced my brain to compensate for whatever normal proprioception pathways it lacks by building an alternate one. Neuroplasticity is great!
It's hard to practice social basics when you're older because most of the adult population have mastered them and expect the same of others, but there are _plenty_ of people of any age who aren't any good at dancing and are trying to learn despite.
I was much the same way--absolutely abysmal at any sort of sport requiring the barest ounce of physical coordination. I semi-randomly ended up in ballet class in my early teens though, and started social dance in college because my friends did. I can't say I was amazing at those either, but not so awful as I was at youth sports, and it's developed into a great way to de-stress.
My proprioception for dance is quite good now (even if I'm still shit at remembering specific steps), and while I can't compare it to others', I'd guess that sticking with it forced my brain to compensate for whatever normal proprioception pathways it lacks by building an alternate one. Neuroplasticity is great!
It's hard to practice social basics when you're older because most of the adult population have mastered them and expect the same of others, but there are _plenty_ of people of any age who aren't any good at dancing and are trying to learn despite.
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> I have spent majority of my adult life operating under the idea that I'm on the spectrum
Has this changed over time? Your opening sentence kind of suggests that it has, but you do not return to this idea. I'm curious what your current opinion is.
Has this changed over time? Your opening sentence kind of suggests that it has, but you do not return to this idea. I'm curious what your current opinion is.
Her Nanette special - https://www.youtube.com/watch?v=5aE29fiatQ0
Nanette 2 - https://www.youtube.com/watch?v=lWJhMnYv6Mg
Can Nanette 3 be about autism?
Nanette 2 - https://www.youtube.com/watch?v=lWJhMnYv6Mg
Can Nanette 3 be about autism?
I found these fundamentally unwatchable, but I guess there’s an audience for it.
Nanette is more an angry speech by a clever and witty person than the "comedy special" it's made out to be.
I mean she starts out by saying she is quitting comedy.
See also https://blog.ted.com/how-hannah-gadsby-broke-comedy/
See also https://blog.ted.com/how-hannah-gadsby-broke-comedy/
Well, she’s certainly angry at least.
Not a fan of how she's focusing her career on grievances and opening up on her grudges. Doesn't lead anywhere.
She's got talent to do more interesting things than complaining about the same over and over, in a dead end road.
She's got talent to do more interesting things than complaining about the same over and over, in a dead end road.
Saw her most recent special (Hasn't been on Netflix or anything) last August in Darwin, and it was a pivot back to more standard comedy. Mentioned some of her issues, but far less rant-orientated than Douglas or Nanette.
I think this sentiment would be good motivation for her to keep on going. For one, a lot of comedy is based on grievance and grudge and presenting them in a novel light. And she is shedding light on subjects, that could use a more honest representation in mainstream culture.
And as a dutch person, I was happy that I could finally watch a comedian with my wife, that didn't have the rapid fire of separate jokes and at some random point just... ends. Instead I could watch a show with her that had theme and an arc, and also wasn't afraid to just put the audience in uncomfortable position and leave them there for a while. It really felt like going to a dutch comedian, and I was surprised to see this have any success in the US market.
And as a dutch person, I was happy that I could finally watch a comedian with my wife, that didn't have the rapid fire of separate jokes and at some random point just... ends. Instead I could watch a show with her that had theme and an arc, and also wasn't afraid to just put the audience in uncomfortable position and leave them there for a while. It really felt like going to a dutch comedian, and I was surprised to see this have any success in the US market.
I bet she's devastated that her struggles are insufficiently entertaining for you.
> "It is a basic human right to have average abilities."
I really like that quote from her on multiple dimensions.
I really like that quote from her on multiple dimensions.
I like this quote because it doesn't make any sense. It's obvious that not everyone operates with the same level of ability. Some have more ability than others, which necessarily means some are below average. Stating that "average ability is a human right" doesn't change the mathematical reality.
> Some have more ability than others
On some dimensions. On other dimensions, some will not have more ability.
I may be good at programming computers. That does not make me good at welding or art.
In particular, I like the fact that it drives home that it is NOT okay to set up our society so that it demands better than average in order to be considered to be a "worthwhile" member of society.
A person who is simply "average" should be able to have a meaningful life.
On some dimensions. On other dimensions, some will not have more ability.
I may be good at programming computers. That does not make me good at welding or art.
In particular, I like the fact that it drives home that it is NOT okay to set up our society so that it demands better than average in order to be considered to be a "worthwhile" member of society.
A person who is simply "average" should be able to have a meaningful life.
And from it a management philosophy which needs to be more prominent: the goal is to strive for the best output each employee is capable of by shaping their environment to serve them best. The goal is not to hold each employee to the same standard and punish the below average.
Autism has become a catch-all for "people who are weird". "Neurotypical" is the vaguely condescending opposite. Notice the sneer when she refers to "neurotypical 'experts'". The basic idea is that people who are weird are a subjugated minority, oppressed by people with boring, normal brains.
I don't doubt that Hannah Gadsby is weird but I think life is hard for everyone, including normal people. I think the struggles she enumerates are common: most of us have crises of identity or meaning, many of us feel intense insecurity, cut off and isolated from others. This isn't to minimize her suffering, it's to say that suffering is normal.
I have a strong objection to people who freely talk about negative experiences. Some of the people I respect the most have had extremely negatives experiences but mention them only with great reluctance. There's something about that that seems right. Columns like this debase the currency: by exalting empathy and understanding as the highest values, they devalue them.
I don't doubt that Hannah Gadsby is weird but I think life is hard for everyone, including normal people. I think the struggles she enumerates are common: most of us have crises of identity or meaning, many of us feel intense insecurity, cut off and isolated from others. This isn't to minimize her suffering, it's to say that suffering is normal.
I have a strong objection to people who freely talk about negative experiences. Some of the people I respect the most have had extremely negatives experiences but mention them only with great reluctance. There's something about that that seems right. Columns like this debase the currency: by exalting empathy and understanding as the highest values, they devalue them.
I have over the years developed an ever increasing disillusionment with the quality of medical providers. Not all of them, mind you, but it seems just as rare to encounter a smart, extremely competent doctor as it is a random person in the general population when one would expect the selective process to result in a much higher proportion. The sneer is well deserved. The attachment of “neurotypical” is inappropriate because it is unnecessary.
> Some of the people I respect the most have had extremely negatives experiences but mention them only with great reluctance. There's something about that that seems right.
This reminds me of the recurring story of the apparently happy upbeat person committing suicide to the surprise of almost everyone around them. Hiding your demons to survive and overcompensating chasing respect and accomplishments is one way to cope, this sometimes results in a quality life, other times it is just masked suffering. Promoting this ethic can be extremely toxic trapping people, especially if from childhood, into being afraid of letting anybody know about their problems.
> Some of the people I respect the most have had extremely negatives experiences but mention them only with great reluctance. There's something about that that seems right.
This reminds me of the recurring story of the apparently happy upbeat person committing suicide to the surprise of almost everyone around them. Hiding your demons to survive and overcompensating chasing respect and accomplishments is one way to cope, this sometimes results in a quality life, other times it is just masked suffering. Promoting this ethic can be extremely toxic trapping people, especially if from childhood, into being afraid of letting anybody know about their problems.
Weirdly, this is the second time today I was reminded of the poem Richard Cory by Edwin Arlington Robinson - and it's only 5 AM.
Whenever Richard Cory went down town,
We people on the pavement looked at him:
He was a gentleman from sole to crown,
Clean favored, and imperially slim.
And he was always quietly arrayed,
And he was always human when he talked;
But still he fluttered pulses when he said,
"Good-morning," and he glittered when he walked.
And he was rich—yes, richer than a king—
And admirably schooled in every grace:
In fine, we thought that he was everything
To make us wish that we were in his place.
So on we worked, and waited for the light,
And went without the meat, and cursed the bread;
And Richard Cory, one calm summer night,
Went home and put a bullet through his head.
Whenever Richard Cory went down town,
We people on the pavement looked at him:
He was a gentleman from sole to crown,
Clean favored, and imperially slim.
And he was always quietly arrayed,
And he was always human when he talked;
But still he fluttered pulses when he said,
"Good-morning," and he glittered when he walked.
And he was rich—yes, richer than a king—
And admirably schooled in every grace:
In fine, we thought that he was everything
To make us wish that we were in his place.
So on we worked, and waited for the light,
And went without the meat, and cursed the bread;
And Richard Cory, one calm summer night,
Went home and put a bullet through his head.
I think there's a difference between having a support network to share your emotions with and demanding that the world change. I can't really imagine the author being any healthier having published this article.
I don't think it's a sneering to point out that if most people who talk about something lack the direct experience of having it, they may not represent it well. Personal experience gives folk's different perspectives. Autism certainly seems to.
And whether the struggles she enumerates are common or not, if suffering is normal and near universal as you suggest, I think it's good to ask, does it have to be so? Are there things we can do to make the world better?
I think not talking about something is unlikely to change anything.
And whether the struggles she enumerates are common or not, if suffering is normal and near universal as you suggest, I think it's good to ask, does it have to be so? Are there things we can do to make the world better?
I think not talking about something is unlikely to change anything.
> But as the myths are so firmly embedded into popular (mis)understanding, I don’t have the luxury to skip over them, so it is just a sad reality that I have to waste even more of my time to bring many of you up to speed.
As the quote shows, the article is full of sneering, it’s just a sad fact that I have to waste my time pointing it out to you.
Apologies for that but I think directing her words towards you exposes the sneer without any doubt.
As the quote shows, the article is full of sneering, it’s just a sad fact that I have to waste my time pointing it out to you.
Apologies for that but I think directing her words towards you exposes the sneer without any doubt.
To be clear, this is a book extract, not something she wrote for the guardian, but for someone who picked up her book to read.
She says many of you. Why are you including yourself in the many, if you already knew what she has to say?
Why are you so upset by a comedian writing about her experiences that you have to engage with it at all?
I just don't see a sneer. I just took a bit and reread the while thing. What I read is frustration, not superiority.
I don't think she's looking down on folks who haven't had her struggles. I think she wants people to understand them, perhaps so they can be more understanding to autistic folks in their lives.
But I don't think I'll convince you to see it my way, so I'll drop this.
She says many of you. Why are you including yourself in the many, if you already knew what she has to say?
Why are you so upset by a comedian writing about her experiences that you have to engage with it at all?
I just don't see a sneer. I just took a bit and reread the while thing. What I read is frustration, not superiority.
I don't think she's looking down on folks who haven't had her struggles. I think she wants people to understand them, perhaps so they can be more understanding to autistic folks in their lives.
But I don't think I'll convince you to see it my way, so I'll drop this.
> But I don't think I'll convince you to see it my way, so I'll drop this.
You managed to have your say, which was just as snide as hers, so now I'll have mine.
> To be clear, this is a book extract, not something she wrote for the guardian, but for someone who picked up her book to read.
If this has a relevance, I fail to see it.
> She says many of you. Why are you including yourself in the many, if you already knew what she has to say?
That makes no sense.
a) I did not include myself in the many.
b) I also made no indication that I had. You can always quote me if you wish but as I only wrote two sentences, one of which was a parody of her words, I think that's going to be difficult for you.
c) I didn't know what she has to say, I made reference to the sneering, the delivery, not the content.
> Why are you so upset
I'm not upset, at least, not by her words.
> by a comedian
I'm yet to see her tell a funny joke but each to their own.
> writing about her experiences that you have to engage with it at all?
I was engaging with you. Are you telling me how to spend my time, on a forum, and implying that I shouldn't have my say, while having your say, on a forum?
What are you on about?
> I just don't see a sneer.
It’s just a sad fact that I have to waste my time pointing it out to you, repeatedly. <- Is that not a sneer? I can tell you that it is.
> I just took a bit and reread the while thing. What I read is frustration, not superiority.
I'd feel better if you'd taken the time to read my comment properly and not infer things from it that were only the product of your imagination.
> I don't think she's looking down on folks who haven't had her struggles. I think she wants people to understand them, perhaps so they can be more understanding to autistic folks in their lives.
Like her "jokes", her attempts to provoke understanding look like the complete opposite of what I'd expect. I mean, it's just so draining for her to have to spend time explaining herself, in her own words, in her own book. How does she do it? Such a hero.
> But I don't think I'll convince you to see it my way, so I'll drop this.
Please do.
You managed to have your say, which was just as snide as hers, so now I'll have mine.
> To be clear, this is a book extract, not something she wrote for the guardian, but for someone who picked up her book to read.
If this has a relevance, I fail to see it.
> She says many of you. Why are you including yourself in the many, if you already knew what she has to say?
That makes no sense.
a) I did not include myself in the many.
b) I also made no indication that I had. You can always quote me if you wish but as I only wrote two sentences, one of which was a parody of her words, I think that's going to be difficult for you.
c) I didn't know what she has to say, I made reference to the sneering, the delivery, not the content.
> Why are you so upset
I'm not upset, at least, not by her words.
> by a comedian
I'm yet to see her tell a funny joke but each to their own.
> writing about her experiences that you have to engage with it at all?
I was engaging with you. Are you telling me how to spend my time, on a forum, and implying that I shouldn't have my say, while having your say, on a forum?
What are you on about?
> I just don't see a sneer.
It’s just a sad fact that I have to waste my time pointing it out to you, repeatedly. <- Is that not a sneer? I can tell you that it is.
> I just took a bit and reread the while thing. What I read is frustration, not superiority.
I'd feel better if you'd taken the time to read my comment properly and not infer things from it that were only the product of your imagination.
> I don't think she's looking down on folks who haven't had her struggles. I think she wants people to understand them, perhaps so they can be more understanding to autistic folks in their lives.
Like her "jokes", her attempts to provoke understanding look like the complete opposite of what I'd expect. I mean, it's just so draining for her to have to spend time explaining herself, in her own words, in her own book. How does she do it? Such a hero.
> But I don't think I'll convince you to see it my way, so I'll drop this.
Please do.
I don't think this comment section is supposed to be a competition. Neither do I think the article was a sneer towards others, but a way to ask for empathy for a certain situation. It wasn't about you, and you don't need to make it about you.
I didn't make it about me at any point - is there an underline function I can use to make that clear for those who like to read into things that were never written?
Or perhaps you can quote where I made it about me, here's the link to my comment https://news.ycombinator.com/item?id=30885603
And this is the comment in its entirety, just pick it out for me:
> > But as the myths are so firmly embedded into popular (mis)understanding, I don’t have the luxury to skip over them, so it is just a sad reality that I have to waste even more of my time to bring many of you up to speed.
> As the quote shows, the article is full of sneering, it’s just a sad fact that I have to waste my time pointing it out to you.
> Apologies for that but I think directing her words towards you exposes the sneer without any doubt.
Good luck.
Or perhaps you can quote where I made it about me, here's the link to my comment https://news.ycombinator.com/item?id=30885603
And this is the comment in its entirety, just pick it out for me:
> > But as the myths are so firmly embedded into popular (mis)understanding, I don’t have the luxury to skip over them, so it is just a sad reality that I have to waste even more of my time to bring many of you up to speed.
> As the quote shows, the article is full of sneering, it’s just a sad fact that I have to waste my time pointing it out to you.
> Apologies for that but I think directing her words towards you exposes the sneer without any doubt.
Good luck.
> I don't doubt that Hannah Gadsby is weird but I think life is hard for everyone, including normal people. I think the struggles she enumerates are common: most of us have crises of identity or meaning, many of us feel intense insecurity, cut off and isolated from others. This isn't to minimize her suffering, it's to say that suffering is normal.
"Everyone feels those things you describe" was how coworkers and supervisors dismissed a partner's attempts to seek accommodation for their auditory processing disorder.
This person had test results showing they struggled significantly more than others in noisy environments to focus or understand spoken language, and showed them to said coworkers and supervisors, who still insisted that "everyone finds that stuff distracting." Yes, but here are the scientifically validated, objective test results showing it is significantly worse for them was her response. They didn't care. They decided that "everyone goes through this sort of thing, this person is just fragile."
Your attitude is also strikingly similar to how people dismiss talk of racism and sexism. "I'm a guy and people are sexist to me" and so on.
> I have a strong objection to people who freely talk about negative experiences.
Says the person who went out of their way to post a comment complaining about people seeking accommodation for their disabilities (and I might add, has decided that they're mostly all a bunch of fakers.)
> Some of the people I respect the most have had extremely negatives experiences but mention them only with great reluctance.
Maybe they only mention them with great reluctance is because you're not a safe person to mention them around.
"Everyone feels those things you describe" was how coworkers and supervisors dismissed a partner's attempts to seek accommodation for their auditory processing disorder.
This person had test results showing they struggled significantly more than others in noisy environments to focus or understand spoken language, and showed them to said coworkers and supervisors, who still insisted that "everyone finds that stuff distracting." Yes, but here are the scientifically validated, objective test results showing it is significantly worse for them was her response. They didn't care. They decided that "everyone goes through this sort of thing, this person is just fragile."
Your attitude is also strikingly similar to how people dismiss talk of racism and sexism. "I'm a guy and people are sexist to me" and so on.
> I have a strong objection to people who freely talk about negative experiences.
Says the person who went out of their way to post a comment complaining about people seeking accommodation for their disabilities (and I might add, has decided that they're mostly all a bunch of fakers.)
> Some of the people I respect the most have had extremely negatives experiences but mention them only with great reluctance.
Maybe they only mention them with great reluctance is because you're not a safe person to mention them around.
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> Maybe they only mention them with great reluctance is because you're not a safe person to mention them around.
Based on OP's other comments, I wouldn't find this hard to believe considering their complete dismissal and misunderstanding (or perhaps intentional misinterpretation) of people's comments that antagonize open questions and considerations.
Based on OP's other comments, I wouldn't find this hard to believe considering their complete dismissal and misunderstanding (or perhaps intentional misinterpretation) of people's comments that antagonize open questions and considerations.
I think autism has become the IBS of neurodiversity, and will be retired someday just as the diagnosis of “hysteria” was retired as a catch all for women’s issues a century ago.
If we get a better understanding of what autism actually is, I'd expect we'd also establish more specific and accurate terms for it. I don't see any reason why it would just go away as a concept, though. It seems like it's pretty well established at this point that there is a collection of characteristics that some people have that fit the current understanding of what is meant by "autism". I'm not an expert in the area, though, so if you think that's not true it'd be interesting to know why not.
I expect it will be understood to be several separate things, which express themselves in vaguely similar ways, but are quite different both in origin and treatment.
(Adding to this) Similar to how depression, anxiety, PTSD, and a few other manifest similarly, but are labeled, diagnosed and treated as separate issues.
> I don't see any reason why it would just go away as a concept, though. It seems like it's pretty well established at this point that there is a collection of characteristics that some people have that fit the current understanding of what is meant by "autism".
The caveat being that this category exists within the current framework. The same could be said about "female hysteria", and pretty much all psychological conditions that have been left behind as symptoms of the zeitgeist.
The caveat being that this category exists within the current framework. The same could be said about "female hysteria", and pretty much all psychological conditions that have been left behind as symptoms of the zeitgeist.
I'm sceptical the concept of "autism" is tenable in the long term either, it's such a catch-all "spectrum" with diverse underlying causes which present in behaviour which is similar yet broadly defined enough that two people can be diagnosed with autism with entirely different symptomatic presentations with zero overlap.
At the same time, regardless of what you think the social conceptual juggernaut that is "Autism" is not going away overnight or even this decade, nor are the rest of DSM-V disorders. They serves a useful function, such as telling bosses to force their employees to attempt to work in a noisy workplace with flickering lights and off-gasses to fuck off. At this point the concept of autism has become tied up with peoples social identities, with the law, and with a whole lot of money on a massive scale and one doesn't simply unwind that all by going "This whole thing is dumb". One needs to start from the fundamentals, which is why was the social need for the concept of "Autism Spectrum Disorder" created in the first place and why was the concept promoted so readily by so many different interests?
At the same time, regardless of what you think the social conceptual juggernaut that is "Autism" is not going away overnight or even this decade, nor are the rest of DSM-V disorders. They serves a useful function, such as telling bosses to force their employees to attempt to work in a noisy workplace with flickering lights and off-gasses to fuck off. At this point the concept of autism has become tied up with peoples social identities, with the law, and with a whole lot of money on a massive scale and one doesn't simply unwind that all by going "This whole thing is dumb". One needs to start from the fundamentals, which is why was the social need for the concept of "Autism Spectrum Disorder" created in the first place and why was the concept promoted so readily by so many different interests?
> I think autism has become the IBS of neurodiversity, and will be retired someday
Absolutely.
But until then, do you have a better alternative label or (armchair) diagnosis to use?
Absolutely.
But until then, do you have a better alternative label or (armchair) diagnosis to use?
Autism has a few biological sequelae so I don’t think this is gonna be the case. For example their brains grow faster than normal for the first few years of life but slower thereafter. And you can see differences in their brains under a microscope. Or at least that’s what I read in a book recently, I am not an expert.
Would be interested in knowing why this was downvoted —- is this wrong?
Where did you read about autism? What was the title of the book?
This one: https://www.simonandschuster.com/books/An-Epidemic-of-Absenc...
An Epidemic of Absence, by Moises Velasquez Manoff.
An Epidemic of Absence, by Moises Velasquez Manoff.
> I have a strong objection to people who freely talk about negative experiences. Some of the people I respect the most have had extremely negatives experiences but mention them only with great reluctance. There's something about that that seems right. Columns like this debase the currency: by exalting empathy and understanding as the highest values, they devalue them.
I'm not sure I understand your objection. The struggles people go through and their ways of overcoming them help shape who they are, and sharing the journeys of these struggles can help people undergoing similar experiences. Especially when it comes to something as isolating and widespread as understanding self-identity. While I'd agree that yes, most people have similar struggles with identity/insecurity, her struggles with undiagnosed autism are relatively unique, and there is value in sharing her story and learning from it.
Apologies if I've misunderstood your comment.
I'm not sure I understand your objection. The struggles people go through and their ways of overcoming them help shape who they are, and sharing the journeys of these struggles can help people undergoing similar experiences. Especially when it comes to something as isolating and widespread as understanding self-identity. While I'd agree that yes, most people have similar struggles with identity/insecurity, her struggles with undiagnosed autism are relatively unique, and there is value in sharing her story and learning from it.
Apologies if I've misunderstood your comment.
There is a personality type that derives fuel from relating their tragedies to others. To some people that can be a trait that is cloying and indicates other issues that tend to accompany this personality profile.
I find it bizarre how uncritically the social construct of doubling the ranks of the mentally ill/disordered in the course of decades has been introduced. There is no way in the last few decades the amount of mentally disordered people has expanded so greatly, it must be the case we're simply calling more people disordered. The growth of mental disorders is starting to plateau now but things are still growing.
I find it all to be part of a modern fetishization of victimhood as as something that ought to give you entitlements without responsibilities, and consequently has greatly expanded the ranks of victims in society. I find it straight up bizarre in some sense that a student in an elite school will get academic accommodations and access to amphetamines on the pretence they just can't be as successful as other students when it has to be the case many of these students would end up at community college or state school without the drugs and be fine. It's kind of like to me an athlete playing for a crappy school team getting diagnosed with "strength deficit disorder" getting on steroids and breaking records and this is justified with all sorts of pseudoscience about how steroids actually have the opposite effect on muscletypicals (proving steroids are a drug for only those with legitimate medical need) when the entire sports team is on steroids. We also give them a headstart in all races to ensure that they don't have any performance anxiety.
Re: Experts, The expert she's referring to, more than anybody, is Simon Baron Cohen and his research has been replicated many times yet only applies to MOST but not ALL autistic children. He famously applied the Sally-Anne test to autistic children https://en.wikipedia.org/wiki/Sally%E2%80%93Anne_test to demonstrate "mind blindness". I would say the biggest issue with the research is that it took place is 1988 and autistics are not remotely the same group of people that they were in 1988, so it wouldn't even surprise me if autistics were no longer mind blind in this way, since autism is not even remotely consistent in its definition across time. I sympathize with any criticism of "Experts on autism" because they have shown nothing but incompetence as a group.
I find it all to be part of a modern fetishization of victimhood as as something that ought to give you entitlements without responsibilities, and consequently has greatly expanded the ranks of victims in society. I find it straight up bizarre in some sense that a student in an elite school will get academic accommodations and access to amphetamines on the pretence they just can't be as successful as other students when it has to be the case many of these students would end up at community college or state school without the drugs and be fine. It's kind of like to me an athlete playing for a crappy school team getting diagnosed with "strength deficit disorder" getting on steroids and breaking records and this is justified with all sorts of pseudoscience about how steroids actually have the opposite effect on muscletypicals (proving steroids are a drug for only those with legitimate medical need) when the entire sports team is on steroids. We also give them a headstart in all races to ensure that they don't have any performance anxiety.
Re: Experts, The expert she's referring to, more than anybody, is Simon Baron Cohen and his research has been replicated many times yet only applies to MOST but not ALL autistic children. He famously applied the Sally-Anne test to autistic children https://en.wikipedia.org/wiki/Sally%E2%80%93Anne_test to demonstrate "mind blindness". I would say the biggest issue with the research is that it took place is 1988 and autistics are not remotely the same group of people that they were in 1988, so it wouldn't even surprise me if autistics were no longer mind blind in this way, since autism is not even remotely consistent in its definition across time. I sympathize with any criticism of "Experts on autism" because they have shown nothing but incompetence as a group.
I think this chart expresses my opinion better than I could. https://www.washingtonpost.com/blogs/wonkblog/files/2015/09/...
Using that as a reference point, maybe we're at "1910" with regards to our awareness of neurodivergence, or maybe we're at "1950", but certainly there are many people who will be better off once we hit "1960".
Your argument only holds water if you presuppose that everyone who would have met the diagnostic criteria of 20-50 years ago was also evaluated against those diagnostic criteria. I have far better than typical access to diagnostic services, and it took a referral, several appointments, and thousands of dollars to get a formal diagnosis. If I had that same access 25 years earlier, I probably would have been far better supported through my education.
Using that as a reference point, maybe we're at "1910" with regards to our awareness of neurodivergence, or maybe we're at "1950", but certainly there are many people who will be better off once we hit "1960".
Your argument only holds water if you presuppose that everyone who would have met the diagnostic criteria of 20-50 years ago was also evaluated against those diagnostic criteria. I have far better than typical access to diagnostic services, and it took a referral, several appointments, and thousands of dollars to get a formal diagnosis. If I had that same access 25 years earlier, I probably would have been far better supported through my education.
Do you have a problem with the words "disorder" or "illness"? Because it comes across to me that it rubs you the wrong way that so many people can be considered flawed in some way. I don't think that way of looking at people is untruthful or wrong, it's just a lot more nuanced to look at it than a person being either "sane" or "insane".
I really do wonder this as you so explicitly put "mentally ill" and "disordered" as interchangeable, which they clearly are not. Pretty much everyone has some kind of disorder, which they can address. Only a few have a mental illness, which they can learn to cope with.
Your example also serves to reduce attempts at nuance even further, by trying to make mental illness only understandable through the lens of a physical one. So one has got to wonder: maybe you are lumping way too many things onto one pile?
I really do wonder this as you so explicitly put "mentally ill" and "disordered" as interchangeable, which they clearly are not. Pretty much everyone has some kind of disorder, which they can address. Only a few have a mental illness, which they can learn to cope with.
Your example also serves to reduce attempts at nuance even further, by trying to make mental illness only understandable through the lens of a physical one. So one has got to wonder: maybe you are lumping way too many things onto one pile?
First, I’ll say the APA defines mental disorders as a subset of mental illness which contradicts your definition [1]. In my experience, people tend to define these terms incredibly inconsistently and I don’t get caught up in the semantics.
Second, I would say I have both social and scientific objections to the concept of mental disorders.
Scientifically, the definition of what is considered a disorder is INCREDIBLY subjective. The DSM-V definition includes language like “impairment in an IMPORTANT area of functioning” and “reflects a dysfunction”. Being gay and transgender are two things that were considered disorders and no longer are. Generally the reasoning as to why these are not mental disorders is that being gay/trans does not make somebody intrinsically unhealthy and some of the things we see like higher suicide rates in those groups are a result of social stigma… which are ALL things I can rather trivially claim about many cases of autism.
Socially, it’s just unnecessarily insulting to call people dis-ordered. In the context of autism, it is well known it can present as a combination of strengths and weaknesses, but the mere existence of weaknesses gets the insulting label of “disorder”. This shows a condescending sense of superiority among the doctors who coined “Autism spectrum disorder”. I don’t feel medical language like disorder or illness is very nuanced at all, I feel it’s reflective of blasé and thoughtless generalization and the language mostly serves to stigmatize which is why people got mad about it being used to describe trans people.
[1] https://www.psychiatry.org/patients-families/what-is-mental-...
Second, I would say I have both social and scientific objections to the concept of mental disorders.
Scientifically, the definition of what is considered a disorder is INCREDIBLY subjective. The DSM-V definition includes language like “impairment in an IMPORTANT area of functioning” and “reflects a dysfunction”. Being gay and transgender are two things that were considered disorders and no longer are. Generally the reasoning as to why these are not mental disorders is that being gay/trans does not make somebody intrinsically unhealthy and some of the things we see like higher suicide rates in those groups are a result of social stigma… which are ALL things I can rather trivially claim about many cases of autism.
Socially, it’s just unnecessarily insulting to call people dis-ordered. In the context of autism, it is well known it can present as a combination of strengths and weaknesses, but the mere existence of weaknesses gets the insulting label of “disorder”. This shows a condescending sense of superiority among the doctors who coined “Autism spectrum disorder”. I don’t feel medical language like disorder or illness is very nuanced at all, I feel it’s reflective of blasé and thoughtless generalization and the language mostly serves to stigmatize which is why people got mad about it being used to describe trans people.
[1] https://www.psychiatry.org/patients-families/what-is-mental-...
I’m not too surprised if there were tons of people who historically would’ve been just considered crazy or possessed or the village idiot or “retarded” or a thousand other things that we now have more specific categories for.
Now how much schizophrenia and anxiety and autism have in common as a umbrella category of “mentally ill” — probably not much.
The discussion around “academic doping” seems spot-on to me.
Regarding the increase in diagnoses of autism-spectrum, I think a few decades ago, those people would have just been called “weirdos” or “creepy” or “special”. They might not have had a diagnostic label, but it was not as if they were unlabeled by those around them.
Regarding the increase in diagnoses of autism-spectrum, I think a few decades ago, those people would have just been called “weirdos” or “creepy” or “special”. They might not have had a diagnostic label, but it was not as if they were unlabeled by those around them.
The amount of people that allegedly have ADHD, the U.S is a big outliner when you compare it with other, similarly developed nations.
I believe it will be looked back at some point like opioid crisis.
My prediction is that the whole song and dance where you need to prove you have ADHD will fade away, and people will be able to basically just be able to get ADHD drugs from a doctor on the condition you get your blood pressure checked and such.
I think if the culture can normalize coffee, it certainly can normalize amphetamines and methylphenidate. Like to me it's hilarious in a way how offices will literally provide drugs (coffee, tea) to their employees for people to self-medicate with.
I think if the culture can normalize coffee, it certainly can normalize amphetamines and methylphenidate. Like to me it's hilarious in a way how offices will literally provide drugs (coffee, tea) to their employees for people to self-medicate with.
you're fairly judgmental, you think there's a way people should be, and other ways people should not be. this is exactly the type of attitude that exacerbates the alienation autistics already feel.
> you're fairly judgmental, you think there's a way people should be, and other ways people should not be.
Yes. The reason we have brains is so we can make judgements.
Yes. The reason we have brains is so we can make judgements.
I think you have opinions, on the other hand judgements need argumentation. You've simply stated that you object "to people who freely talk about negative experiences" because some other people you like a lot don't do that. That's not a judgement, it's just you expressing your personal preferences. It's not very interesting per se to be completely honest with you.
And the reason we have words is so that you can be told that you're confusing function with design/intent.
There is no intent nor design of a brain, they are a product of the evolutionary process.
Autism is not an emotional cycle, it's not a circumstantial state
it's a disorder determined by genetics.
Either you got the genes, or you don't. Pretty binary.
it's a disorder determined by genetics.
Either you got the genes, or you don't. Pretty binary.
Just had to call out a nuance here - Disorder is an extremely strong word. People living with ASD are not "weird" or "abnormal" in anyway whatsoever, they are just different. As a society, we accept people's genetically predetermined sexual orientation, regardless of whether it represents the majority. ASD is no different, lets avoid calling it a disorder.
ASD: Autism spectrum disorder
Though I agree, in certain aspects is a super-power. In certain aspects it's a hampering disability. Semantics.
Though I agree, in certain aspects is a super-power. In certain aspects it's a hampering disability. Semantics.
Disorder is a medical term that means an illness that disrupts normal physical or mental functions. This describes autism but not homosexuality (which, I was not aware, has now been declared to be of entirely genetic basis?)
Even if they were to both fit the definition, I’m not sure what the objection to the word is.
Even if they were to both fit the definition, I’m not sure what the objection to the word is.
To slap down my lived experience: gay and on the spectrum.
And the spectrum part is definitely a disorder. It’s a deep-down and profound inability to connect. We are a fundamentally social species, to a fundamental inability to get socialization at a visceral level is pretty disordered.
And the spectrum part is definitely a disorder. It’s a deep-down and profound inability to connect. We are a fundamentally social species, to a fundamental inability to get socialization at a visceral level is pretty disordered.
If this is true, where can I read about these specific genes, when and how they were discovered?
> It's a disorder determined by genetics.
This is wildly inaccurate.
> Either you got the genes, or you don't. Pretty binary.
Even more wildly inaccurate. It's not remotely binary. There is no autism gene or genes. Environmental factors (nurture) still factor heavily.
https://www.spectrumnews.org/news/autism-genetics-explained/
and a myriad of other articles and research papers one can find by googling "genetics autism."
This is wildly inaccurate.
> Either you got the genes, or you don't. Pretty binary.
Even more wildly inaccurate. It's not remotely binary. There is no autism gene or genes. Environmental factors (nurture) still factor heavily.
https://www.spectrumnews.org/news/autism-genetics-explained/
and a myriad of other articles and research papers one can find by googling "genetics autism."
> This is wildly inaccurate.
"Wildly" might be an overstatement. As your own link says, genetics are a significant (but not the only) factor.
I agree the whole binary thing is BS, but i think what the poster was originally trying to dispute is that its all in people's head as an emotional state, which is also clearly very wrong.
"Wildly" might be an overstatement. As your own link says, genetics are a significant (but not the only) factor.
I agree the whole binary thing is BS, but i think what the poster was originally trying to dispute is that its all in people's head as an emotional state, which is also clearly very wrong.
sure, and if there's half a dozen cases of autism in my family, it's because of what we eat (environment)
simne(1)
People would rather get a diagnosis to belong to a community than be an outcast who struggles to fit in and have their gifts recognized.
Disclaimer: am on spectrum, formal diagnosis at 8yo
> have their gifts recognized.
Please explain how _extreme difficulty in socializing_ is a "gift".
> have their gifts recognized.
Please explain how _extreme difficulty in socializing_ is a "gift".
Autistic people have gifts and personalities just like everyone else does. People I know often have found a diagnosis liberating because they can often then identify the ways that being autistic has caused them friction with non-autistic society. If nothing else, they can find tools to help them work better in their environments. But they can also work to shape the world around them to be more accessible to autistic people like themselves. And that allows them to better use their gifts and express their personalities.
The parent comment discussed communities of people who have similar struggles. I don't think they meant that the struggle is also the gift (people can make something beautiful out of their pain, but I don't think the pain itself is something to be celebrated). I think they meant that people in a community brought together by a common struggle are better able to see the uniqueness in each other, because within the community the struggle is not what defines them.
The parent comment discussed communities of people who have similar struggles. I don't think they meant that the struggle is also the gift (people can make something beautiful out of their pain, but I don't think the pain itself is something to be celebrated). I think they meant that people in a community brought together by a common struggle are better able to see the uniqueness in each other, because within the community the struggle is not what defines them.
People are sometimes less likely to recognize your true gifts if you don’t socialize well. Silicon Valley is probably an exception where people on the spectrum are stereotyped somewhat positively.
They didn't say it was. They said it's a barrier to having ones gifts recognized. Or at least that's my interpretation.
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You have a very acerbic approach to the notion that other people have developmental disorders apparently borne out of a persecutory delusion that they have developmental disorders solely to declare the way your brain works boring, and brandish your ignorance about them with unusual glee. If someone tells you they're dyslexic, do you lash out at them because you think they're trying to throw shade on your boring normal ability to read?
Autism is not a catch-all for people who are weird. Psychiatrists diagnose autism using a set of defined criteria where autistic people differ from the average population, where those differences are not explained by other disabilities that often result in similar differences (https://www.cdc.gov/ncbddd/autism/hcp-dsm.html).
It's true that we don't have a full understanding of autism, or explanations of why individuals vary in the specific symptoms they exhibit, but that doesn't mean the diagnosis is a random label applied to anyone who is weird, it means that psychiatric conditions are often difficult to understand, and that we need more scientific research to understand them better. People with schizophrenia would also be considered "weird" by most of the population, but we don't label them autistic because of that. I, and I think many others, consider Snoop Dogg a bit weird, but I wouldn't attribute that to autism; I would attribute it to his Snoop Doggness.
Gadsby isn't saying that autistic people have a monopoly on suffering, but that autistic suffering comes from a specific set of limitations, and not understanding what those limitations are, or thinking that you could just rid yourself of them through sheer force of will is very frustrating. Paraplegic people also suffer, but it's not because they have limited social cognition or hypersensitivity to sensory input, it's because they lack the use of their legs in a world largely designed for those that can walk. Paraplegia is, however, much more visible and more easily diagnosed that a developmental disorder: we can easily see that paraplegics cannot move their legs, and paraplegics can easily see what people who can walk are able to do that they can't.
Developmental disorders are much harder to see: you cannot peer inside an autistic person's brain function and see how their brain functions, and autistic people cannot see inside the workings of allistic brains to see that they're using mental "limbs" that they cannot exercise. It'd be cool if we could! but science has a ways to go before we can.
The complaint about neurotypical parents and medical professionals isn't that they're oppressing or subjugating autistic people, but that they're describing the condition from the perspective of someone who lives without it and can't easily conceptualize that experience--the diagnostic criteria can identify who has autism, but they can't describe how it's shaped their lives. For lack of a more elegant description, if you're disabled, hearing someone who shares that disability "i know that feel bro" with you helps immensely to alleviate feelings of isolation, much more than a doctor explaining the diagnostic criteria you meet.
Your strong objection to people talking about negative experiences and view that emotional repression is a virtue are yours to hold if you so desire, but I hope you understand that many people don't feel the same, and will consider you a callous, oppressive person if you try to enforce that opinion as the correct one by treating their sharing their problems as a personal attack. This isn't a criticism of your boringness for lack of a developmental disability, it's a criticism of your wanton disregard for others' experiences and unjustified, self-centered offense that they have the gall to talk about them.
Autism is not a catch-all for people who are weird. Psychiatrists diagnose autism using a set of defined criteria where autistic people differ from the average population, where those differences are not explained by other disabilities that often result in similar differences (https://www.cdc.gov/ncbddd/autism/hcp-dsm.html).
It's true that we don't have a full understanding of autism, or explanations of why individuals vary in the specific symptoms they exhibit, but that doesn't mean the diagnosis is a random label applied to anyone who is weird, it means that psychiatric conditions are often difficult to understand, and that we need more scientific research to understand them better. People with schizophrenia would also be considered "weird" by most of the population, but we don't label them autistic because of that. I, and I think many others, consider Snoop Dogg a bit weird, but I wouldn't attribute that to autism; I would attribute it to his Snoop Doggness.
Gadsby isn't saying that autistic people have a monopoly on suffering, but that autistic suffering comes from a specific set of limitations, and not understanding what those limitations are, or thinking that you could just rid yourself of them through sheer force of will is very frustrating. Paraplegic people also suffer, but it's not because they have limited social cognition or hypersensitivity to sensory input, it's because they lack the use of their legs in a world largely designed for those that can walk. Paraplegia is, however, much more visible and more easily diagnosed that a developmental disorder: we can easily see that paraplegics cannot move their legs, and paraplegics can easily see what people who can walk are able to do that they can't.
Developmental disorders are much harder to see: you cannot peer inside an autistic person's brain function and see how their brain functions, and autistic people cannot see inside the workings of allistic brains to see that they're using mental "limbs" that they cannot exercise. It'd be cool if we could! but science has a ways to go before we can.
The complaint about neurotypical parents and medical professionals isn't that they're oppressing or subjugating autistic people, but that they're describing the condition from the perspective of someone who lives without it and can't easily conceptualize that experience--the diagnostic criteria can identify who has autism, but they can't describe how it's shaped their lives. For lack of a more elegant description, if you're disabled, hearing someone who shares that disability "i know that feel bro" with you helps immensely to alleviate feelings of isolation, much more than a doctor explaining the diagnostic criteria you meet.
Your strong objection to people talking about negative experiences and view that emotional repression is a virtue are yours to hold if you so desire, but I hope you understand that many people don't feel the same, and will consider you a callous, oppressive person if you try to enforce that opinion as the correct one by treating their sharing their problems as a personal attack. This isn't a criticism of your boringness for lack of a developmental disability, it's a criticism of your wanton disregard for others' experiences and unjustified, self-centered offense that they have the gall to talk about them.
tonguez(1)
What I found interesting is that as I experimented with lowering my screen time and doing more analog activities, my symptoms that had me believing I was on the spectrum started to disappear.
I became more extroverted. I regained my attention towards a single task. I no longer exploded with anger or frustration when I was overwhelmed. I even started to accomplish things I never thought I would and see side projects to completion.
At a certain point, I said enough is enough with regards to coping and dedicated each new day to working on these challenges. I don't think I'm the same person I previously identified as. I mean that in a good way.
The article mentions this a bit later:
> Most people who struggle to find stable employment also contend with things like intergenerational poverty and/or trauma, cycles of abuse, mental illness, systemic discrimination, disability or neurological disorders. Not only are these all chronically stressful and traumatic circumstances, they have all been linked to a high incidence of impaired executive function.
I would agree here. As I started to face my childhood/generational trauma, mental illnesses, and other regular things you question as you approach 30, I started to find much more peace with everything. On-top of that, I started to find what I'm passionate for and continue to work towards that each day.
I think everyone has their own journey to go through, but I do believe it's possible to change drastically as an individual.